University of Cambridge > > Wellcome Genome Campus Society and Ethics seminars > Unravelling Disability’s DNA: Experience and Identity in a Genomic Age

Unravelling Disability’s DNA: Experience and Identity in a Genomic Age

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If you have a question about this talk, please contact Richard Milne.

Disability, and more specifically disability prevention, is at the very heart of genomic medicine, driving the ever-widening capabilities of genomic technologies. However, very little is known about the views of people living with genetic disabilities towards these developments, as well as the consequences they anticipate both for themselves, and wider society.

This talk draws on extensive empirical (qualitative and quantitative) data from people living with five of the most common genetic disorders facing the UK population, as well as their families, asking the question: what does it mean to be a genetically disabled person in an age of genomic medicine? It is only through unravelling of some of this group’s complex responses to genomic medicine that a productive, and mutually beneficial, dialogue be established around genomics and disability, that has, until now, been largely overlooked.

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This talk is part of the Wellcome Genome Campus Society and Ethics seminars series.

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